{"id":5728,"date":"2011-11-19T17:06:00","date_gmt":"2011-11-19T17:06:00","guid":{"rendered":"https:\/\/ajetebeqiraj.org\/2011\/11\/19\/ndal-paragjykimeve-ndaj-personave-me-sindromin-down\/"},"modified":"2026-03-10T22:54:51","modified_gmt":"2026-03-10T22:54:51","slug":"ndal-paragjykimeve-ndaj-personave-me-sindromin-down","status":"publish","type":"post","link":"https:\/\/ajetebeqiraj.org\/en\/ndal-paragjykimeve-ndaj-personave-me-sindromin-down\/","title":{"rendered":"NDAL paragjykimeve ndaj personave me Sindromin Down"},"content":{"rendered":"
\n

\"2<\/p>\n

Dojce Vele, 19 nentor 2011.<\/strong> N\u00eb Kosov\u00eb deri me tani jan\u00eb identifikuar 649\"Vajze<\/p>\n

persona me Sindromin Down. Por, duke pasur parasysh faktin se kjo kategori n\u00eb t\u00eb shumt\u00ebn mbahet e izoluar nga shoq\u00ebria, shifrat nuk jan\u00eb t\u00eb besueshme.<\/p>\n

\u00a0<\/i><\/p>\n<\/div>\n

<\/p>\n

Sebahate Hajdini-Beqiri, nj\u00eb n\u00ebn\u00eb e re nga Prishtina, edhe pas gjasht\u00eb vitesh kujton m\u00ebnyr\u00ebn se si iu kumtua lajmi se foshnja e saj ishte i prekur nga Sindromi Do\u00eb\u00ebn:<\/div>\n
<\/div>\n
\u201cMua m\u00eb \u00ebsht\u00eb th\u00ebn\u00eb se f\u00ebmija im s\u00b4do mund t\u00eb ec, s\u00b4do mund t\u00eb flas dhe nuk ia vlen te investohet n\u00eb t\u00eb. Me t\u00eb v\u00ebrtet, m\u00eb \u00ebsht\u00eb p\u00ebrshkruar n\u00eb nj\u00eb m\u00ebnyr\u00eb aq t\u00eb tmerrshme e cila m\u00eb krijoi nj\u00eb ndenj\u00eb t\u00eb cil\u00ebn s\u00b4mund ta p\u00ebrshkruaj dhe m\u00eb \u00ebsht\u00eb dashur koh\u00eb t\u00eb mbledh fuqin\u00eb p\u00ebr t\u00eb ecur tutje dhe t\u00eb merrem me f\u00ebmij\u00ebn tim. Un\u00eb e\u00a0 kam ndier\u00eb veten fajtore, athua se cfare f\u00ebmije solla n\u00eb k\u00ebt\u00eb bot\u00eb dhe cfar\u00eb t\u00eb k\u00ebqija do t\u00b4i sjell ai shoqeris\u00eb s\u00eb Kosov\u00ebs. Fatkeqsisht, un\u00eb isha nj\u00eb n\u00ebn\u00eb e cila nuk kishte informim t\u00eb qart\u00eb se cka \u00ebsht\u00eb sindromi i Down-it…Mir\u00ebpo, kjo kalon me koh\u00ebn!\u201d
\n<\/b>
\nNj\u00eb ndjenj\u00eb t\u00eb till\u00eb Zyhra Bajramaj, n\u00ebn\u00eb e nj\u00eb vajze me sindromin Down, e njeh tash 15-t\u00eb vjet.<\/div>\n
\u00a0<\/i><\/div>\n
\u201cVallahi \u00ebsht\u00eb v\u00ebshtir\u00eb boll! Qika o kon\u00eb me sindromin Down gjithmon\u00eb. Por, tash edhe po m\u00eb s\u00ebmuret. Gjith\u00eb dit\u00ebn m\u00eb duhet me e rujt e kur nuk jam ktu, me e thirr dik\u00eb se m\u00eb bjen e m\u00eb rr\u00ebzohet ku t\u00b4\u00ebsht\u00eb,a n\u00b4zjarr,a n\u00b4uj\u00eb, gjithkund. Dy her\u00eb m\u00b4ka ra n\u00b4sof\u00ebr!\u201d,<\/i> rr\u00ebfen Zyhraja. <\/i><\/div>\n
\n

\u00a0<\/b><\/b><\/p>\n

\"Sebahate
Sebahate Beqiri – Down Sindrome Kosova<\/figcaption><\/figure>\n<\/div>\n
\n

Down Sindrome Kosova u themelua nga prind\u00ebrit e f\u00ebmij\u00ebve t\u00eb prekur<\/b><\/p>\n<\/div>\n

\n

Organizata joqeveritare Down Syndrom Kosova u themelua nga prind\u00ebr dhe familjar\u00eb t\u00eb personave t\u00eb prekur me sindromin Down, e cila vepron q\u00eb nga viti 2007. Objektiv i organizat\u00ebs \u00ebsht\u00eb senzibilizimi dhe integrimi i k\u00ebsaj kategorie n\u00eb shoq\u00ebri. Nj\u00ebra nd\u00ebr t\u00eb dy themelueset e para \u00ebsht\u00eb z.Beqiri e cila thot\u00eb p\u00ebr D\u00cb-n\u00eb:<\/p>\n<\/div>\n

\u201cSi prind\u00ebr dhe familjar\u00eb t\u00eb f\u00ebmij\u00ebve me sindromin Down, ne kemi par\u00eb padrejt\u00ebsit\u00eb q\u00eb ua jan\u00eb b\u00ebr\u00eb k\u00ebtij komuniteti. Kjo na shtyri q\u00eb t\u00eb themelojm\u00eb organizat\u00ebn me an\u00eb t\u00eb s\u00eb cil\u00ebs denjsisht do t\u00b4i mbronim t\u00eb drejtat e personave t\u00eb prekur me sindromin e Downit\u201d.<\/b><\/i><\/div>\n
\u00a0<\/i><\/b><\/div>\n
Deri m\u00eb tani jan\u00eb identifikuar 649 persona me sindromin Down <\/i><\/b><\/b><\/div>\n
<\/div>\n
Lidhur me shifrat si dhe p\u00ebrkudesjen ndaj personave me sindromin Down nga qeveria e Kosov\u00ebs, neve nuk na u dha p\u00ebrgjegje nga p\u00ebrfaq\u00ebuesi i Zyr\u00ebs s\u00eb kryeministrit p\u00ebr Qeverisje t\u00eb Mir\u00eb, z.Habit Hajredini, p\u00ebrkund\u00ebr konfirmimit paraprak t\u00eb intervist\u00ebs. Nga ana tjet\u00ebr, organizata Down Sindrom Kosova, raporton p\u00ebr 649 persona t\u00eb prekur me sindromin Down n\u00eb Kosove, mirepo keto te dhena nuk llogariten si te sakta, duke pasur parasysh se raste t\u00eb tilla n\u00eb Kosov\u00eb n\u00eb t\u00eb shumt\u00ebn mbahen t\u00eb izoluara. Nd\u00ebrkoh\u00eb, vazhdon identifikimi i rasteve t\u00eb reja, thot\u00eb z. Beqiri.<\/div>\n
<\/div>\n
\n

\u201cFateqsisht, personat me sindromin D\u00ebon jan\u00eb t\u00eb rrethuar nga paragjykimet e shoq\u00ebris\u00eb se jan\u00eb persona joproduktiv, nuk jan\u00eb t\u00eb vlefsh\u00ebm p\u00ebr shoq\u00ebrin\u00eb. Mir\u00ebpo, organizata jon\u00eb b\u00ebn p\u00ebrpjekje t\u00eb vazhdueshme p\u00ebr t\u00eb vetdij\u00ebsuar shoq\u00ebrin\u00eb, se n\u00ebse ju jepet p\u00ebrkrahje, ata nuk do t\u00eb jen\u00eb vet\u00ebm barr\u00eb e shoq\u00ebris\u00eb. Personat e prekur me sindromin Down prej vitit 2009 g\u00ebzojn\u00eb nj\u00eb asistenc\u00eb sociale prej 100 eurosh. Mir\u00ebpo, k\u00ebto mjete nuk ekzekutohen me rregull n\u00eb gjirollogarit\u00eb e prind\u00ebrve, e her\u00eb-her\u00eb vonohen deri n\u00eb tre muaj, q\u00eb \u00ebsht\u00eb tep\u00ebr p\u00ebr k\u00ebta f\u00ebmij\u00eb t\u00eb cil\u00ebt kan\u00eb nevoj\u00eb t\u00eb vazhdueshme p\u00ebr trajtime mjeksore\u201d.<\/p>\n<\/div>\n

<\/div>\n
Sa jan\u00eb t\u00eb p\u00ebrfshir\u00eb n\u00eb arsim personat me sindromin Down?<\/b>
\n<\/b><\/div>\n
<\/div>\n
N\u00eb Kosov\u00eb jan\u00eb b\u00ebr\u00eb hapa t\u00eb duksh\u00ebm n\u00eb arsimin gjith\u00ebp\u00ebrfshir\u00ebs. \u00cbsht\u00eb hartuar \u201cPlani Strategjik p\u00ebr Organizimin e Arsimit Gjithp\u00ebrfshir\u00ebs p\u00ebr F\u00ebmij\u00ebt me Nevoja t\u00eb Vecanta n\u00eb Arsimin Parauniversitar 2010-2015\u201d si dhe \u201cPlani Individual i Arsimit\u201d, i cili siguron t\u00eb drejt\u00ebn dhe qasjen m\u00eb t\u00eb leht\u00eb t\u00eb k\u00ebtyre kategorive n\u00eb arsim. Edhepse, jo gjithmon\u00eb \u00ebsht\u00eb k\u00ebshtu…<\/div>\n
\u00a0<\/i><\/div>\n
\n
\"Femija
Familjes Beqiri nuk ia zbeh lumturine femija me Sindromin Down<\/figcaption><\/figure>\n

\u201cE kam cu qik\u00ebn n\u00b4fillore deri n\u00b4klas\u00ebn e kat\u00ebrt. M\u00ebsuesit ma donin e ma m\u00ebsojshin, por ma ngushsin e rrahshin f\u00ebmij\u00ebt. Mandej u ndal prej shkolle e s\u00b4shkoi ma hiq!\u201d, <\/i>thot\u00eb Bajrama. <\/i><\/p>\n<\/div>\n

<\/div>\n
Si rrjedhoje, Besemira 15 vjecare flet me zor e t\u00eb shkruaj nuk di asnj\u00eb shkronj\u00eb.<\/div>\n
\u00a0<\/b><\/div>\n
Kushtet dhe rrethanat faktor kyq p\u00ebr zhvillimin e f\u00ebmij\u00ebve me sindromin Down <\/b><\/div>\n
\u00a0<\/b><\/div>\n
\n

Foshnjat me sindromin Down mund t\u00eb lindin n\u00eb cfar\u00ebdo kohe, vendi, moshe apo rrethane. Mir\u00ebpo, t\u00eb kuptuarit drejt t\u00eb problemit si dhe kujdesi dhe k\u00ebmbngulja e prind\u00ebrve kan\u00eb shum\u00eb r\u00ebnd\u00ebsi n\u00eb zhvillimin e m\u00ebtutjesh\u00ebm t\u00eb f\u00ebmij\u00ebs s\u00eb prekur me sindromin Down. N\u00eb gjith\u00eb k\u00ebt\u00eb, Beqiri \u00ebsht\u00eb nj\u00eb shembull i mir\u00eb.<\/p>\n<\/div>\n

\u201cF\u00ebmija im fatmir\u00ebsisht \u00ebsht\u00eb i kyqur n\u00eb kopshtin \u201cGezimi Yn\u00eb\u201d dhe ka nj\u00eb p\u00ebrkrahje t\u00eb madhe nga stafi i kopshtit. Loriku im \u00ebsht\u00eb integruar aq mir\u00eb n\u00eb at\u00eb kopsht dhe ai realisht nuk dallon asgj\u00eb prej f\u00ebmij\u00ebve t\u00eb tjer\u00eb me t\u00eb cil\u00ebt \u00ebsht\u00eb n\u00eb grup\u201c, .<\/i><\/div>\n
<\/div>\n
Komisioni Evropian dhe Zyra p\u00ebr Qeverisje t\u00eb Mir\u00eb, kan\u00eb mb\u00ebshtetur organizat\u00ebn Down Syndrome Kosova me projektin dyvjecar \u201cProgrami i Edukimit dhe Intervenimit t\u00eb Hersh\u00ebm\u201d n\u00eb vler\u00eb mbi 90 mij\u00eb euro, 80 p\u00ebr qind t\u00eb t\u00eb cilit \u00ebsht\u00eb financuar nga Bashkimi Evropian. N\u00eb kuader t\u00eb programit zhvillohen aktivitiete t\u00eb fizioterapis\u00eb dhe psikomotorik\u00ebs, n\u00eb t\u00eb cilin jan\u00eb t\u00eb kyqur f\u00ebmij\u00eb t\u00eb prekur nga sindromi Down, prej mosh\u00ebs gjasht\u00eb muajshe deri e mosh\u00ebn 16 vjecare.<\/div>","protected":false},"excerpt":{"rendered":"

Dojce Vele, 19 nentor 2011. N\u00eb Kosov\u00eb deri me tani jan\u00eb identifikuar 649 persona me Sindromin Down. Por, duke pasur parasysh faktin se kjo kategori n\u00eb t\u00eb shumt\u00ebn mbahet e izoluar nga shoq\u00ebria, shifrat nuk jan\u00eb t\u00eb besueshme. \u00a0<\/p>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"jetpack_post_was_ever_published":false,"slim_seo":{"title":"NDAL paragjykimeve ndaj personave me Sindromin Down - Ajet\u00ebBeqiraj.org","description":"Dojce Vele, 19 nentor 2011. N\u00eb Kosov\u00eb deri me tani jan\u00eb identifikuar 649 persona me Sindromin Down. 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